Born April 5, 2009 6:37 pm. 1 pound 8.5 ounces, 12 1/2 inches long, at 25 weeks and 1 day. Lincoln has short gut syndrome and is TPN dependent.
Tuesday, May 19, 2009
NEC strikes again!
It was our second day back to work today and things had been going very well for little Lincoln. Unfortunately we received a phone call at work from a surgeon at Children's around 10 am that he has a very serious infection. What was so shocking and disturbing to us is that it happens to be the same horrible problem he developed a month ago: NEC, necrotizing enterocolitis. This condition only affects 5% of preemies and of those only 5% of them need surgery. Well, we were in that teeny percentage of the ones needing surgery. Luckily Lincoln survived it but he did lose 27cm of his small intestine. The chances of NEC striking the same kid twice is extremely rare, almost unheard of. Today we found out he has it AGAIN!!!!! It has not caused a hole in his intestines yet and they have started him on 3 very strong antibiotics to try and stop it from progressing. We viewed the xrays with the doctor and can see the large air pockets in his intestines. They will continue to xray him every 6 hours to check the status and we just pray it will be cured by medication. The scary thing is that NEC progresses so quickly and is so destructive. They had to stop his feedings again and he will be fed through the iv by TPN. He was very very sick today and caused a big scare to the nurses and doctors but seemed to have improved tonight after his blood transfusion and having a tube inserted into his stomach to suck the air out of it. What we do know is that Lincoln is a very strong little boy and has already fought through so many awful things so we have hope that he will conquer this again! As for Greg and I going to work tomorrow, I am doubtful. Lincoln has made his point that he wants his mom and dad with him all day again!
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wise decision.. the little guy needs you more than you need to be at work worrying about him!!!
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