Mystery illness...

Linc is hanging in there! I just got home from visiting him at the hospital.... Greg stayed home to take Cole to his ball game, they lost by 1 but did a great job! No real changes in Lincoln's health.. he is still having drastic drops in his blood platelet count and getting transfusions.. it was back down to 19 last night but after his transfusion it made it up to 56 at noon.. (150 is the lowest normal count) he gets another check at midnight. Due to this unusual issue with his platelets the Infectious Disease doctors are checking him. I met one of them tonight and he stated that the cause of Lincoln's serious infection and NEC are still unknown. He has been on 3 very strong antibiotics for 10 days and they seem to have partially helped him but he still has the 'mystery' infection. The area of his intestines with the fixed loop is still showing on xray but is a little better than last week. So they have noooo idea what his status is!!! It's very frustrating!! They are consulting with the Neonatoligists and Surgeons to come up with a new plan to try and kill the infection by changing his antibiotics or the dosage. He is completely off his pain meds so he was more alert.. still very very swollen and puffy from edema but looking better. The NNP said he is responsive and she can tell he is able to focus on objects with his eyes and wakes up when they touch him... those are all good things.. he also loves to suck on his pacifier... it amazes me how he is able to suck on it with 2 different tubes going down his throat but he somehow manages!! We had a great new nurse Julie tonight that was wonderful.. hope to have her very often! We are hoping to only work half of the day tomorrow so we can get to Columbus in time to meet Lincoln's Physical Therapist and consult with his doctors... He is actually looking and acting much better.. they just need to figure out what is killing his platelets and causing his sickness..