Born April 5, 2009 6:37 pm. 1 pound 8.5 ounces, 12 1/2 inches long, at 25 weeks and 1 day. Lincoln has short gut syndrome and is TPN dependent.
Sunday, May 31, 2009
Lincoln is 8 weeks old today!
Little Lincoln is doing ok... he got 2 blood transfusions and a platelet transfusion yesterday.. they just can't get his blood and platelet levels to stabilize... he will likely need a new platelet transfusion tonight since they were back down to 31 at noon... anything under 50 is severe and in his case they transfuse him anytime they hit 20 or below... they do more labs at midnight and we are sure they will be back below 20. Other than that he is doing ok.. still has the unknown infection and the NEC in his intestines... although it does look much better! He has now been on the Amphotericin B since Saturday.. hopefully it solves the blood/platelet problem and kills the unknown infection so he can get back to eating and growing! He is very very swollen from all the fluids and blood he has been given so he looks like a big chubby boy!! He's adorable! He was sucking on his tiny thumb when we got there yesterday... soooo cute! Of course his right arm is still pinned down to keep him from pulling out the A-line in it.. that is a line that goes in his right wrist and up into his heart to give him fluids and medications without needing to constantly be doing iv's.. although he also has several iv's still. They are considering taking him off the ventilator and placing him back on cpap so that would be good.. and we would be able to hold him again! Only negative is that we will no longer be able to see his head and face since he will have the hat and tubes on again... Still no clarification on the abnormal 'blast cells'... I asked his NNP how many he has and she said he had a 'blast' on April 29 (news to us!!) and another on May 28 but none since.. she also said he has other 'abnormal' immature white blood cells (several different names she gave me of each) that have appeared but not every time.. then today they got his platelet count back and discovered he also has 'giant platelets'... ??? we googled and are still confused by what that means! We waited several hours today to talk to his new physician but due to other emergencies occurring we were unable to see him.. We will be able to talk to him tomorrow... We did notice today that his heart rate was low and also his temperature... hopefully that is no big deal but I guess we won't know anything until we call after rounds tomorrow morning... Considering Lincoln has had at least 35 blood and 35 platelet transfusions we now understand the importance of donating blood.. so if you ever have the opportunity please donate! We also want to tell everyone that has left comments that we read them every day and we really appreciate them all!!
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