Friday, May 29, 2009

Are you Freaking Serious????















Well.. from our title you probably sense something unexpected popped up today.. if so, you are correct!!! We've talked about how Lincoln's infection is still unknown and the Infectious Disease doctors have been looking at him.. well today we found out that his platelets are still continuing to drop drastically without any known cause. At midnight last night they were 56.... and at the noon testing today they were 25.. the problem is that they should not be dropping at all... he just had a new platelet transfusion two days ago yet they cannot get high and stay high.. knowing this the NNP told us that he has completed his 10 days of the 3 broad spectrum antibiotics and is still having the serious issues with his platelets and low blood.. he is at the point of needing yet another blood transfusion today but they are holding off for now since they do not want to pump any more liquids into him... so knowing this.. they tell us they are going to start him back on Amphotericin B.. this is the very strong antibiotic he was on for over 30 days and JUST finished.. so now we are restarting it... ??? Very confusing. They also mentioned that he has e-coli in his breathing tube (this is round 3 of e-coli for him) and a 'bactierial infection' at is t-tube sight. But they aren't worried considering the extreme dosage of antibiotics he has been on.. so the KICKER is.. if this new antibiotic doesn't get it then they will call in the Oncology department.. so, having done my OWN research I knew already that the lack of balance and issues with his blood could possibly be related to Leukemia.. I asked our NNP and she agreed... this is why they mentioned Oncology... they have been unable to figure out his infection and blood issues and mentioned something about 'blast cell's' he has. So that is our latest shock! The fact that the Neonatolgists and Infectious Disease doctors can't figure this out is worrisome.. It's just crazy that our little adorable perfect boy is being tried like this in his little life.. what does give us hope is his strong will and gentle nature... he is the miracle boy in our eyes and we fall more in love with him every day.........................
Comments are appreciated!!!!

7 comments:

  1. we are praying for you guys and think about you everyday just keep in mind that he is a strong little guy and he's been through a lot and he's gonna be ok!
    much love, hugs, and kisses
    janel and family

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  2. know that Lincoln has been on your prayer chain Deb and I will continue to pray for you and Lincoln's nurse's and Dr's

    If you need anything please let Pher or I know

    Fred and Deb

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  3. Hang in there guys we will keep praying for Lincoln. He is so cute I can't wait to see him. I love that you send all the pictures. Love Bernice

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  4. I am so proud of you both for how well you have been dealing with such unbelievable circumstances and tribulations! No one can begin to grasp how this truely feels unless you've gone through it personally. I think you guys are setting a powerful example of true strength for lincoln to follow... and boy how has he!! How many more bacteria and viruses does our little guy have to fight to prove he wants to be here!!! I definately know one thing... when he is better and is home no one will be able to mess with him! He is such a stong willed and precious little guy. Thank you soo much for keeping everyone updated with the blog. I know a lot of people are checking daily and really appreciate it.I LOVE the pictures!! especially the one with his hand on his head! It's almost like he is saying "oh boy, here we go again!" As always you all are in our prayers and hopefully we can come and see him again soon!

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  5. The little guy is an inspiration for everyone reading his blog!He already made me proud! love,uncle phil

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  6. I'm so sorry to hear that there is more infection. Hopefully they will find out what it is and that is is not leukemia. My niece has leukemia, got it at 17 years old and was in remission and has it back again so, I know some of what you are going through. Please know that you are in our thoughts and prayers. If you NEED ANYTHING, please let me know.

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  7. Oh Lora!!!! I'm soooo sorry to hear this. I HATE that they are even thinking Leukemia... If you need anything and I do mean ANYTHING please let me know. As you know I've been through the cancer scares myself and I understand what you and Greg must me thinking and how you are feeling. If you need anyone to talk to at all please call me. I love you guys! And I'm praying with all I have for Lincoln, and you, greg & Cole!
    Love you guys!
    Amy E.

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