Lincoln has been in the hospital for the majority of the summer due to infections and was admitted again today. He was in all last week for yet another central line infection.. the cultures were negative Thursday so they allowed us to take him home on one IV antibiotic (vanco) but unfortunately this infection popped back up even worse and they have been unsuccessful in killing it. They have been trying everything possible to avoid removing his central line because babies typically only have 4 access sites to use: arm, groin, leg, neck. Once you remove a line from a site you cannot ever use that same site again. That's very scary.. if you ever run out of usable sites you cannot do anything else for the child so obviously they are holding that as total last resort. They performed an echocardiogram today to see if the infection is in his heart but it was negative. They tried to do an MRI on his chest today to see if he has any other usable sites but stopped it because his tonsils are now swollen and they do not have a good enough airway to safely sedate him. Now we have NO idea what their next move will be. They cannot stop this awful sepsis infection and they cannot do an MRI to move to plan B. Once he acquired his first line infection it's just been nonstop.. it seems to have attached itself to his line and is persistent...
He is still totally dependent on TPN and does not eat or drink anything orally.. we give him 10ml's per hour of a special formula for 16 hours a day through his g-tube but he usually spits it all up.. we are still hopeful he will someday grow enough intestine to eat normally. Not looking so promising right now though.. yes we are very frustrated. On a good note, he is still a happy smiley little boy who is progressing with therapy quite well. He has changed so much and is so sweet and funny. We will add pictures soon. He is 22lbs 9oz as of today.
At the moment he is in room 4019 at Children's.. we will update this page and also his facebook page often.. thanks for keeping him in your prayers. His facebook page is http://www.facebook.com/?ref=home#!/pages/Marion-OH/Linky-Dink-Micro-Preemie-Miracle/225220749018?__a=7&ajaxpipe=1
