Come on Obama.. where's the healthcare reform??? Sheesh! I would LIKE to go home soon!
Ok Nurses, if I hear ONE more giggle about my sweater vest I will come up outta this chair and you WILL be sorry! Dr. Wispe picked it out!
Grandma's got me.. got my Ugg's on... no, those aren't capri's they are very cool Kenneth Cole jeans... where's Kim when I need my pants fixed??Little Linc is doing great! He is at 5.5 ml's of formula, which is the highest we've gotten so far! He is almost 14 pounds and such a cute, sweaty, chubby boy.. adorable!
We had a great weekend, Cassy had us a baby shower and we got soo many wonderful things for little Dink.. he will LOVE them all.. and we had such a fun day! Thank you Cindy, Jay, Christy, Krystle, Crystal, Shelly, and all of our friends for doing soooo much to help and all the wonderful food!!! We love you guys!
Greg and Linc's newspaper article has generated a lot of response from everyone.. the picture was a hit.. the only thing that bothers me about it is that the article almost insinuates that we personally owe a $3 million dollar medical bill.. we are lucky that Medicaid has covered the majority of his costs so far... we are not sure what will happen next since that is over when he is discharged but I want to make sure everyone knows we are not responsible for that much of a bill... don't get me wrong, we have a ton of medical bills, etc.. but nothing near $3 million or we would be in serious trouble..haha! Greg says I'm crazy (true) but I just don't want people thinking that. Our big issues are now shifting to how we will manage without my income when he is home, how will we manage the costs of his medical supplies, medications, equipment, nursing etc.. but if he is approved for full Medicaid some of that will be covered.. so just to clarify we are not in debt millions of dollars.. lol! We are very grateful for all the support and the donations in Lincoln's name.. we will use them wisely.. his care will be very complex but we are ready for the challenge. We are getting quotes from companies to have a backup generator installed in our home to ensure Lincoln's equipment never loses power and to keep his medications safely at the correct temperature, and we are hoping to have an air purifier installed in our home to keep his lungs as healthy as they can be with is lung issues. But we are prepared for whatever happens.. all that matters is that we get him home and give him a happy, stable, healthy environment in which he can grow and thrive like every baby should!
Oh my Gosh! Haha.. that is my direct quote to the 'Marion Star" article.. I honestly did NOT believe that those 3 words ever came out of my mouth until then and now I catch myself saying it 129 times a day.. pinch me if you hear it!
Ok, did any of you watch the Grey's Anatomy episode with the adorable 10 year old boy with short-gut? I couldn't believe they had an episode with Linc's condition.. and of course, we cried and cried.. I cannot imagine losing our little guy at 10 years old from this awful condition.. even though it was not 'real' it was very real to us.. we knew what those x-rays meant and the surgery.. brought back awful memories.. we just pray they DO find a cure or solution to save these little guys...we know the reality we are facing but we refuse to give up.. he is such a strong and amazing child.. he will get through this and we will learn from him.
Ok, on to less depressing news:
The foundation basketball games were soo much fun! We had a chance to meet many wonderful people and thank them personally for choosing Lincoln as their honoree for the night.. he is a popular little guy! We are humbled by the generosity of our community and the surrounding communities that have supported us... we've been on the other end of the spectrum and prayed for families, made donations, fretted over what we would do if that happened to us... and would've never thought that we would be on the other side. Everything happens for a reason, and Lincoln is here to teach us all something. Your prayers and well-wishes are working, thank you!
GOD BLESS Lincoln, you and your family! I pray that he gets to go home soon and that everything works out the way that it should. I think that you should send this entire blog to President Obama. Let him see for himself what is happening!
ReplyDeleteby the way: I just love seeing his pictures and the captions - priceless :)
Thanks Gina!! For some reason the comments aren't showing on the blog..grr.. sorry.. I can't figure out how to fix it.. any ideas??
ReplyDeleteLora