Tails between our legs...

haha! That was sooo funny! My nurse tried to get a cannula in my nose.. no thanks!!!

Really, Spongebob?? Just marry Sandy and get it over with... sheesh!

After surgery.. NOTHING gets ME down.. I'm the DINK!

Ewww sour skittles suck!

Yeah, I like to wear my nasal cannula on my forehead when it's night-time.. makes me look cool... you know you like it!

Lincoln had surgery last Friday to install a Broviac central line and to be circumsized.. he did great!!!! They told us he would be sedated from the anesthesia and disoriented until the next morning but he came out of it smiling and coo-ing.. lol! All they could say was "It's Linc".. he is the exception to every rule! The Broviac is working great! We spent the day today being trained in Infant CPR/infant choking/G-tube care and emergencies/Broviac care and emergencies.... we learned soo much!

He is 13.8 pounds and is taking 5ml's of formula per hour... for one hour each day he can be disconnected from all tubes and wires.. it is WONDERFUL!! I got to hold him that way for the first time ever last night.. I carried him over to a window and just showed him the 'outside' .. even though it is just a bunch of buildings, at least he could see the sky!!! Daddy got to do that today too.. how precious that was for the both of them... Cassy got some good photos.. coming soon!!

The reason Lincoln is still at Children's is because he is 'uninsured'.. he is covered by Medicaid right now as 'institutionalized' but when he is released that ends.. THEN Medicaid is income based so we exceed the income level and then are completely uninsured.. this is why he is still in the hospital.. because we cannot prove that we can 'self-pay' the 3 million dollar per year cost for Lincoln's care... obviously we don't have that in our savings account...lol! WHO DOES???? Sooooo... the amazing/astounding/shocking.. truth is that we cannot bring him home until we CAN provide that for him.... the one and only hope is that Medicaid will accept him on a 'waiver'.. meaning they will waive our income and take him on based on his needs.. to ME it seems sooo unfair/illegal to KNOW that Lincoln could come home with us if we had insurance or were independently wealthy.. we HAD insurance but that is maxed out and : NOOO Greg's teacher/athletic director salary does not help us bank 1.1 milion per quarter.. lol that's my fault for too many gingerbread latte's at Starbucks I guess...haha! But in all seriousness, our caseworker and social worker are working diligently on this and praying it all works out.. my question is WHAT if it doesn't?? What if Medicaid says no??? Grrrr... and Greg and I have to be 'interviewed' by Medicaid about our knowledge of Lincoln's issues and pass a 'home inspection'.. wow... .. all I will say is WOW because when I say more I cause controversy....

In other news.. Lincoln and Greg were on the front page of the Marion Star sports page today.. great article.. yes my quotes were stupid but that's just me...lol!

Lastly, we would like to sincerely apologize for the 'MILF' onesie picture/caption and the aftermath.. it was all in good fun.. the onesie was purchased by Lincoln's aunts while on vacation.. as a joke.. it basically means 'Hot Mom' and was meant to lift my spirits when I was sooo down and depressed during the initial weeks of Lincoln's life.. some of my nurses thought it was funny and dressed him in it.. we got a good laugh as Lincoln is the 'cool' kid in the NICU and we thought posting it on the blog would be funny.. we are soo sorry for those that were offended and hurt by it..