Awww.. cute little diapy butt boy!
Well, here you see our adorable little boy with his broviac in his chest, his g-tube, and of course that vicious scar from the shark attack!
Why did Daddy HAVE to eat garlic bread for lunch???
Believe it or not, this is Lincoln's bedside window.. it has a magnificent view of the Eiffel Tower.. Ooops I mean, the parking garage!
Yep, pretty sure that idiot in the giant Hummer with the brush guard just ran over a Mini-Cooper! It was bound to happen eventually!
All that's missing here is Cole, and Home!
Lincoln's first Thanksgiving!!
Hey Auctioneer! I bid 3 binkies for that case of rootbeer!
I won, drank the whole thing, sang karaoke, texted some old girlfriends... zzzzzzzz
I love Thanksgiving day football but if the Lions can't get their act together I will switch it back to Barney!
I am LOVING watching Modern Family, these people are hilarious!! I really want to hang out with Manny on the 'Outside' .
Sitting in my window during my hour of freedom!!
Sometimes I like to pretend I'm on the beach in Tahiti under the shade of a palapa! OH, sorry that's just Daddy's hair!
And that's the face I made when I killed that shark that was attacking me with my bare hands!
Daddy loving me...
I can make that face too Dad!
Me and my Daddy...Good news first: We are 99% sure we will get the Medicaid waiver, which will cover most of Lincoln's care and nursing at home.. which is awesome.. although it is temporary and will be re-evaluated often. We have the home inspection Wednesday and will then know for sure.. the prospective discharge date is Dec. 15 if all goes well.
Bad news: All is not going well. Linc had his new eye exam to check the status of his ROP eye disease. The ROP is resolved, which is great, but an entire new problem has developed. He now has a hemorrhage in his eye.. and that's all we know.. we will get more info tomorrow when we meet with his eye doctor... sooo frustrating! All we know is she needs to talk to us and he has a follow-up exam in a week. This could very likely delay his release but hopefully not.
Other than that, Linc is doing well.. he is up to 7ml's of formula, they decided to try increasing it twice a week by one cc, looks good so far but he's also the kid that ends up getting the oddest and most unexpected issues to pop up!
The Medicaid interview was NOT fun.. the lady was very nice but it was awful to have to hear them discuss his every diagnosis/issue right in front of me. I was ok until they approached the brain issue.. but he is doing ok so far.. he is a little delayed but nothing more than any other NICU resident so we are holding onto hope that he can overcome these delays. We will be getting physical and occupational therapy at home if he ever gets there!
OH MY GOSH.. haha, had to add that, Medicaid lady DID ask us about our 'emotional' state and our 'physical' state.. I went into way too much detail trying to explain how I'm NOT crazy and when it was Greg's turn his ENTIRE answer to her was 'Good'. Haha!!! soo glad that is over!
Thank you to everyone for all your support and prayers.. it is very appreciated!!
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