Tuesday, November 10, 2009

Parole???

Miley Cyrus comes by every Tuesday to serenade me, she's a sweet girl but I'm committed to Josie!


A real smile!!! Seeee how adorable he is!!!!!!!!!!!!!!!!! Of course, that hamster got him again on the cheek.. Kayla set some traps though so we're good!

Nurse Kim or "Miss Kim" always makes him smile!

Well.. we have been teased by Children's about a possible parole date!!! Or, discharge as they choose to word it.. haha! We might get our Dink home by Christmas!!! That would be amazing!!!!!!!! It is being said that he may come home the week after Thanksgiving... We shall see!!! If and when he does get out of there he will be on full tpn/lipids and g-tube feeds at home... that would've terrified us 4 months ago but at this point we welcome it and are sooo ready!!!!!! Soo... we are expediting this as much as we can ... I was trained on central line site care yesterday (nurses: CHART that..lol) and Friday I have to be trained in g-tube care, cpr, physical therapy exercises,etc... I can't wait.. at this point I am sooo ready for all of this.... we just want the DInk home.. I don't care what it takes... we will do it!!
Linc had an MRI done today on his chest and abdomen to see if any clots were present... if not, he will have his picc line removed and have a broviac implanted... this is all scheduled for friday, and they are also going to circumcise him while he is sedated... that's not funny... but trying to explain the circumcision to Cole was HILARIOUS!! Take ME who does NOT discuss private parts or their functions and insert a 10 year old who also has NO clue (thanks to me) and his response is OMG EWWW MOMMMMMMMMMMMMMM!!! This is the same kid who just stomped upstairs MAD yelling 'NICE PARENTING!'
The scary part of this whole thing is the new no-insurance/uninsurable issue we will be dealing with .. we assumed he would be covered by Medicaid but we were wrong.. once he's discharged it's over....and Lincoln was excluded by our insurance company soooo... wow... as terrifying as that is... it is the least of our concerns.. we will work it all out... all that matters is that Lincoln gets home with us... the rest will work itself out.. just keep your fingers crossed that we hit the lottery! Hahahaha...

1 comment:

  1. Lincoln is absolutely adorable! and as it sounds, he is a strong one! As I said on facebook, he is in my prayers!

    Gina

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