Born April 5, 2009 6:37 pm. 1 pound 8.5 ounces, 12 1/2 inches long, at 25 weeks and 1 day. Lincoln has short gut syndrome and is TPN dependent.
Thursday, August 6, 2009
Update...
Our new doctor of the month is wonderful! We are soo happy.. he spent at least an hour just talking to us and listening.. we really needed that. Linc's brain ultrasound showed no hydrocephalus requiring a shunt.. so that's great... and it showed no pvl (permanent damage)... but.....there are areas of concern... which sucks... but... it's all soooo out of our control.. it's not like you can go get a BRAIN transplant!!!!!!!!!!! But, like our new doctor told us... we need to watch Linc.. he moves and acts appropriate.. no issues yet so that is good.. not that we are in the clear but.. we are trying to take it one day at a time... the feedings are going ok as of now... but only 1ml per hour... praying it goes welll... it is our one year anniversary on Saturday, we are planning a great weekend.. Friday with great friends and the Funny Bone!! Saturday is yet to be determined!! Just happy to be together and enjoy ourselves....... just wish Lincoln could be part of it. maybe someday...
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That is such wonderful news!!!! He's a fighter that is for sure. Have a great weekend and enjoy yourselves and be thankful that you have the wonderful support of each other while going through this difficult time. I know it can be ruff, but you are so lucky to have each other to lean on. Your both wonderful people and you will get through this.
ReplyDeleteHave a great anniversary and focus on your blessings and all the special qualities in each other that brought you together begin with.
With love, thougths and prayers,
The Schertzers
Happy Anniversary guys!! What a year! The next 49 to who knows when should be a breeze after this year huh? Take a much needed break and enjoy yourselves. Lots of Love..Tracy
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