Chubby cheeks on Daddy!
Trying to get a good pic of the adorable doggy slippers!
HAHA... the slippers are sooo cute!
Ok, last slippers pic.... we promise!Day 135... Lincoln's feeds were increased to 2ml/hour this afternoon.. we are very anxious to see how he tolerates it! We went on a 'field trip' aren't our nurses funny! I suggested since it was a 'field trip' that we should at least go outside for a second so he can breathe fresh air and see a tree.. but that is forbidden :( ... he really enjoyed it and got lots of attention from everyone in the hallways.. he was wide awake and propped up in his boppy a.k.a Bob.. and was totally adorable!!!!!!! The funny thing is that as soon as we got into the dark ultrasound room and they put the warm gel on his belly he fell fast asleep and stayed that way.. this was an ultrasound to see the status of the blood clot from his old picc line... don't have results yet. If they are good they will be able to stop giving him Heparin finally!! Dad got to change 2 poopy diapers tonight... that was very funny... I almost videotaped it but decided against it! Everyone keeps asking us if Linc is "ok"... as in "is he going to be mentally disabled". The answer is NO. He is right on target developmentally and behaviorally right now. Not to say that he will not have some problems but from what we are told if he had severe disabilities that they would be showing by now.. he is perfect other than the feeding problems. He makes eye contact and will watch you.. he follows objects with his eyes, he reaches for and loves watching his toys... he loves listening to his music and reacts to loud noises... he is a good natured baby and usually only cries when he needs a diaper change, is bored, or we annoy him too much (Daddy...lol)... he moves all his limbs in equal motion... he tries to 'stand' when you hold him up... he can lift his head and move it all around and gets stronger every day.. physical therapists work with him often to work the muscles that would normally be used much more if he were a well baby at home... all nicu babies are seen by therapists... he grasps onto things and has a very strong grip! Sorry for the list but I feel bad sometimes for him that people may be expecting a severely disabled brain damaged kid when he is so perfect... yes we know the future is uncertain but we also know that he acts like a normal baby and the latest brain scan did not show much (if any) permanent damage so we are very optimistic for him! I would probably assume that too by looking at some of our less than positive blog posts...lol!!! But babies brains are amazing and still growing,,, there are kids with much worse brain bleeds than he had that are completely normal.... he is one of them... we can see it in his eyes and every day that we spend with him makes us feel that much more positive and happy for him...
As for the rest of our daily life, our living room tv finally went to electronics heaven so we have ordered a new one (add that to the list of things breaking...lol), so Greg has THAT to look forward to at least! Cole's big birthday bash is Thursday... supposed to be an outside party but now looks like it will storm... greatttttt.... and I heard a rumor that our fabuous electricy company is going to shut off all electricity to the lucky few of us that have them on THURSDAY!! LOLLLLL... wow our luck is great! What the hell, the Amish do it and are always smiling, so can we! Amish 10th Birthday... maybe we will eat pie and raise a barn!!!! Everyone is required to dress the part so come in your Amish best!
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