Born April 5, 2009 6:37 pm. 1 pound 8.5 ounces, 12 1/2 inches long, at 25 weeks and 1 day. Lincoln has short gut syndrome and is TPN dependent.
Tuesday, June 2, 2009
NEC update.. again
Lincoln is still very very sick... his NEC has progressed and he is having blood in his diaper and continues to need platelet and blood transfusions all the time... although he hasn't had any more abnormal cells since last week... our new Dr. and surgeon believe he has dead intestine somewhere in his body and are very concerned. The problem is that they do not know if they will be able to do another surgery on him... we are meeting with the dr.'s and surgeon tomorrow afternoon to see what they can do to help Lincoln. His new head ultrasound showed no changes. His stats are all decent which is another good point. We put a little black, white, and red cow in his isolette facing him and he stared at it for quite a while tonight.. it was funny... he has a buddy to keep him company now :)!
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Hopefully the surgeon and doctors can put their highly educated heads together and figure out a good way to help our cutie pie!! I know we all say it all the time, but what a strong little fighter! He continues to amaze me every day... He makes you stop and realize how much in our every day lives we all take for granted and also how much love and prayer really do make a difference. Please tell Linc tom. that we love him very much!!!
ReplyDeleteGrandma Phyllis.....Lincoln has lots of people praying for him.. He is such a beautiful little boy...sooo cute. He definitely has a very strong will to live. He has been through more in just 2 months than most of us have in our many years. My friend Diane and I visited him for a while this evening ( he was asleep the whole time we were there). He has a lot against him, but he also has a lot for him.
ReplyDeleteDeb... I work with Lincoln's Grandma Phyllis. Lincoln is in our thoughts and prayers. Please know that many many people pray every day for Lincon and your family. He is such a precious boy and so very very amazing with how he continues to battle the many challenges he has been given. What a special little boy!
ReplyDeleteI just came across this blog and couldn't believe how much your family has been through! You sound very involved in Lincoln's care...keep it up! What a precious baby he is...such a fighter! My family will be praying for all of you that this journey is just making each of you stronger...and specifically for Lincoln's health overcoming infections and growing healthier every day! God bless all of you! Dawn
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