Linky Dink!

I was fortunate enough to be a spectator during Lincoln's procedure today. I accompanied Linc and his nurse, respiratory therapist, NNP, and assistants to Flouroscopy so they could remove his feeding tube and replace it with a larger tube. I must say the room we were in was very very interesting.. I almost felt as if I was in Star Trek episode....haha! The technology and equipment was unlike anything I have ever seen and I loved that they had rock music playing loudly.. made it feel much more relaxed and low-key than the usual silent, cold procedure room! He was cool with it until the actual tube exchange began to take place... at that moment he showed his opinion and at one point managed to free one arm just to place it directly in the doctors way with his hand open as if he was saying "ENOUGH!" it was funny.. I love his spunk! Hopefully the larger tube will enable the formula to enter into his system and digest as planned! They are also planning to place him back on the cpap soon.. that will be great! I have been really struggling to find small items to place in his isolette to help his eyes and development... I did find one small black/white/red cow and I positioned it right in front of his eyes tonight to see if he would notice... he DID notice and actually went cross-eyed looking at it! Haha.. his nurse assured me that is totally normal and actually is a good sign! I was just thrilled that he was focusing on things.. he is such an awesome little fighter! As for Greg, Cole, and I, we are living one day at a time! We LOVE staying at our new campground home, Cardinal Center! We only have about 1.5 weeks left there but we plan to enjoy it while we have it and it makes for such a shorter drive to Children's. When our time is up we will be back in Meeker and will figure out the rest of the summer from there...