Poker Night!

Awwww....... enough said.

Well I've learned if I want to see my Daddy I have to be at Ridgedale.... so here I am in Daddy's office.. He gave me the title of Assistant A.D. so I've already scheduled Spring sports, cleaned up his desk, and had a stern talk with some teenagers about their attitudes.. this isn't so tough after all! haha..

Geez, another meeting? nevermind, this job sucks.. see you at 10pm Daddy! lol

Cole says he is the Poker king!

Really Mom??? Stop taking pictures!!!!!!

Dad, my cards suck, I am NOT calling!

I think you're bluffing....

Did Cole REALLY just bet the big blind?

Wow, Cole, you got lucky this time but NOW it's ON!

HA! Take that Cole! A pair of Aces.. got my poker face on!

Come on, bet already.. I've got a bedtime you know!

Hey, here's a close-up of one of the possums that like to sit on our deck and stare at us through the sliding doors.. now YOU can all have nightmares just like us..lol!!!!!!!!!!!!!

Lincoln has grown so much! He is close to 17lbs! He is cooing and laughing and being such a perfect and adorable little boy! He has his favorite toys... and smiles at them when he sees them.. sooo sweet!

His latest eye exam showed the hemorrhage is slowly improving but not resolved.. we were told to keep taking photos of him daily and if we ever see a photo that shows red-eye in the right eye and not the left, to take him to Children's because this is an emergency.... apparently when you see red eye in photos, it is the reflection of the retina.. if we don't see it in his left eye that means his retina has detached and is emergency surgery... so we have been taking ALOT of photos latelyl..lol..

We are a little discouraged because his feedings are not going well... we pushed him up to 14ml's/hour but he can't tolerate it.. he was refluxing horribly among other issues.. we took him back to Children's for his checkup and also had an upper G.I. Study done... the study was disappointing.. we were hoping to see that his intestines had adapted/grown but that is not the case.. the study showed that what little intestine he still has is very distended and not really functioning as we hoped, yet this is to be expected.. we keep hoping that his intestines will 'grow' as he grows and adapt.. unfortunately that has not happened so far.. but luckily, his liver has bought us time.. he has no liver damage yet.. that's amazing! So, we are at 10ml/hour for 20 hours per day of Pregestimil through his feeding tube and we are to give him nothing by mouth at this time... we are getting physical and occupational therapy at home.. hopefully it helps but he can't eat orally anyway at this time.. his poor intestines are just not capable yet.... maybe someday though! At this point we give him his meds, his feeds, his tpn and we wait... wait for him to grow, and wait and pray for his intestines to grow and adapt. The lucky thing is that his liver and organs are doing ok... which is honestly a miracle at this point.. he is such a strong and special boy... with the most awesome adorable personality!