Monday, March 29, 2010

Lincoln's TV debut!

What? You've never seen an 8month old getting ready for a date? Got my Kenneth Cole shirt and jeans on... waiting on my Limo to get here!

I'm a ROCKSTAR.. OH YEAH!
Mommy keeps making me laugh and I'm way too cool for that!

Just waiting on Lindsey and the 10tv team to get here and interview me...

I just hit Daddy in the bad spot and he's trying not to cry... HAHA!

GET THIS CAMERA OUTTA MY FACE! Now I know exactly how Brad Pitt feels!

Yeah, I'm wearing a suit!

Daddy still has an owie! hahahaha

Who can stay mad at this little precious face!

And the finishing touch on my Chicken Parmesan is just a tiiinnny pinch of fresh basil! voila!


Oh Lindsey! I told you NO more questions about who designed my suit!

And after TPAC insurance company dropped me I invited that Obama guy over for some apple juice and cheerios but he is apparently too busy or something?? Whatever Buddy... my votes with the old guy!

OMG Cole! My driving is NOT that bad.. buckle your seatbelt and be quiet!

It's been a long time since we've updated the blog but we've been a little busy :). Lincoln has made great strides since we've been home.. we are so proud of him! He is 17lbs 10oz and 27" long.. he is currently at 10ml/hour of Pregestimil (20 hours per day) and is still fully TPN dependent. He is smiling, cooing, laughing, loves to slap your face or the table or whatever..haha! He moves toys from hand to hand, chews on everything, tries to sit up when you lay him down, has perfect head control, kicks like crazy and loves to bounce in his bounce-bounce as we call it. We think he is doing great..
We did have a very discouraging appointment at Children's yesterday.. we had our first and LAST (by our choice) Neonatology Development checkup.. we met with an unfamiliar Occupational Therapist for half an hour and she performed a Bayley test on him. I had googled enough to know I did not want one done.. they are too subjective and negative.. but we went ahead with it.. NOW I sooo wish I had not allowed it. This stranger determined that he has Global Developmental Delay (the worst case scenario).. they then told us they also think he has worrisome low muscle tone in his legs... oh and they threw in at the end they think he might be cross-eyed! If you are a follower of our blog you probably expect me to tell you I assaulted someone at this point.. BUT I held my composure. I wanted to cry, scream, etc.. but for some reason I was calm... I 'checked out' of the conversation. I let it consume me for the day and I gradually convinced myself that he is NOT that bad.. we knew he was delayed but we were not prepared for such a negative and horrible label to be placed on him. He did everything she asked him or expected him to do in that half hour, except for the following: he did not pick up the tiny stale Cheerio she showed him, he did not respond to us saying his name, he did not grab his feet when on his back, he did not RING the bell, and he did not 'talk' to her. Our explanation is as follows:
#1. WHY would he pick up a boring little cheerio when he doesn't eat, has never seen one, and was still looking for the fun rattle she just took away. #2. He was not listening to us because he was too busy staring at his reflection in her hideous purple eyeglasses ... he is always intrigued by them since Greg and I do not wear them. #3. He grabs his feet alllll the time and even puts his toes in his mouth but was apparently not in the mood to do so on the floor in the closet of a room you had us in. #4. He picked up the bell, looked at the bell, sucked on the bell, put the bell down and was done with...
5. He talks at home.. he coos, he laughs, he squeals... maybe he didn't talk to you because you were not a nice lady!!
We just wonder why they were judging him as a regular 8 month 13 day old baby when he spent his first 8 months on his deathbed, fighting for life on cpap, ventilator, morphine and pinned down to keep his picc line from coming out. He did not get a start on life until around November 2009... but enough of the negativity and ranting.. we feel in our hearts that he is amazing and progressing and improving every single day.. we will not allow one negative random person to change our opinion of our precious son's future... the future may not be as bright and perfect as it could be for him but he will be loved and nurtured and protected.. and he will overcome these labels and obstacles...
On a lighter note, he was on 10tv last week...lol.. we will put the clip on here when we get it.. Lindsey Seavert interviewed us to discuss our views on healthcare reform and how it has and will affect Lincoln... it was a fun experience for sure.. the cameraman, Nate was a great guy and of course we love Lindsey! Greg and I had fun teasing each other about every word and action.. haha. I was like 'Oh NO, like Now what, and Greg put the door up' hahaha... it was a great story.. we just can't help that we are dorks by nature! Now he feels compelled to replay it for every houseguest we have... grrrr!
Basketball season is over for now so we've had some family time to enjoy and it's been fabulous!! We are so excited about the warm weather coming up and spending time as a family... and appreciating every little happy moment and every little smile or laugh from our precious boys... life is good...














1 comment:

  1. He is wonderful, and things will come in due time. God is the Great Physician. You guys did a great job on the TV Debut.

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