LOL.. really Lincoln??? The pink bow and bib was nurse Kim's idea.. haha!
He can be sooo dramatic.. it was NOT that bad!!!!!!!!!!!! haha, obviously Daddy was not there that day..
Yes, this is RIGHT before the pink bib and bow.. I think he knew something was up...Well, to update you all on the eye issue.. the retina guy came by, did the torture test, Linc freaked out like he always does.. poor kid.. it's awful, and checked his left eye.. yes, he does have this hemorrhage still.. unfortunately! All we can do is check it weekly and watch it.. pray it dissolves on its own.. the fear is that it could cause his retina to detach which means he could be blind in that eye.. but they are going to watch it weekly and if it looks like that is happening they can try to stop it... grrr.. it's always something!! They will do another exam tomorrow.. the specialist recommended Linc be sedated for exams as he is TRAUMATIZED by them since it is painful and horribly uncomfortable... not sure if they will or not but it could happen. We have one Monday, Dec 14.. poor Linc.. say a little prayer for him.. :(
He is coming home Tuesday, December 15, 2009!!!!!!!!!!!!! Wow!! 8 months and 10 days from when he was born! It has been a crazy crazy crazy 8 months and we are sooooo excited that he finally gets to come home!!!! This weekend has been sooo busy.. I have had training every day! Greg wanted to be there for it too but unfortunately he had to be at work every day and missed out.. Saturday was 9th grade basketball games, sunday was a booster event, etc.. he is the busiest person I know... he hates that he has to miss these moments and I hate that I always have to do them alone.. I would like to ask all of our co-workers and community members to PLEASE PLEASE be understanding this week... Greg already missed 3 days of critical training that I had to do alone, that's fine, I'm capable, but it's soo sad for him and for me that he can't be there. There is no such thing as a 'sick' day for an athletic director. I get that. My only wish and request was that Greg tell the entire community that he needed the week off, in it's entirety, to be with his family in this once in a lifetime moment, but that proved impossible. Don't get me wrong, the administration has been wonderful.. they're not the issue...lol! But there are some people that don't get it and complain etc.... and that really makes me wonder what drives them.... Grrrrrr... you know.. Karma is a bitch!!!!!!
Sorry, Greg will be mad at me for that post but I needed to say it!! haha!
Moving on, Lincoln is 14lbs 9oz and doing great!! He will come home with two pumps.... one pump for his g-tube (feeding tube) and one for his broviac (tpn, lipids, that goes to his heart)... he will be on the g-tube pump for 24 hours a day and on the broviac pump for 20 hours a day.. the pumps will be plugged in and hung on a pole at home but when we need to go somewhere they will fit into 2 separate backpacks that we will take with us... they have chargers kinda like a cell phone charger... my question was what happens when he crawls ... am I chasing him around with the pole?? lol.. but they said these kids get soo accustomed to being connected that they will put them in a little kid shopping cart or something and take it everywhere they go.. crazy yes but reality. He will be constantly hooked to them so they go where he goes... he already grasps onto them constantly..it's soo funny to watch him... like it's an extra leg or something... he feels around for his g-tube, finds it and holds on for dear life.. the funniest thing ever is when nurse Kim had him and came back from break to him HOLDING his ripped out g-tube smiling at her like nanananana!!! wow.. he is going to be a handful.. and we LOVE it!!!!!!!!! Now, it's a different story with the broviac, that one is much much more dangerous and concerning, so we discourage him from grabbing that one as much as possible... haha...
We have been getting cards and letters lately from people we've never met...it's soo nice and we love all of them! We are keeping every card and letter and making a scrapbook for Linc.. someday he can look back and see all the people that prayed for him and supported him..... and he can thank them himself!!
Hi,
ReplyDeleteLora I am so happy to hear that he gets to come home. I bet this is going to be the best Christmas present ever.
All of you are in my prayers!
Merry Christmas!
Sami McQuistion
I am so happy to see him come home, I cant imagion the excitment you guys must feel. Finally the whole family together under one roof what a releif. Make sure that you take lots of photos his discharge day, and please try to drive over 25mph on your way home.
ReplyDeleteLove to you all, please let us know when we can come visit.
C.Schertzer