Lincoln is HOME!!!!!! The Medicaid waiver went through and he was released! The discharge was happy but also kinda sad... we've spent 8.5 months there and have become very attached to the staff and our awesome nurses.. we will miss them all soo much. I know Linc already misses his special nurses and friends.... but we know we will keep in touch. Bed 6 in the J4 unit will never be the same again... Our nurses made us such a beautiful and touching scrapbook with notes from all his favorite nurses and other hospital staff that he's come to know so well these last 8.5 months.... someday he can read those words and know how much he meant to them and how special he is. Well, this is making me sad so I will move on... haha:
Discharge day was very very hectic but ended soo well! After all the nurses were done at our house we were able to spend a few hours all alone with the Dink.. it was wonderful!!! Daddy showed him his room, the Christmas trees, the windows, Kitty Sue, and his new toys! Mommy rocked him to sleep and he slept from 10pm til 2:30am in his new crib.. what a big boy!! He went back to sleep after getting his binky and slept til 6am.... we brought him into bed with us at 6 which was awesome.. well, that's after Greg stubbed his toe on Linc's IV pole as he was pushing it into the bedroom..haha!! It's an adjustment to say the least, getting used to having 2 pumps inside backpacks to carry everywhere.. and lines that can get caught on anything and everything to watch out for! It's great when he's off the TPN for his 4 hour period because then we have only one backpack to deal with... I don't know HOW we will ever go anywhere with all that but we will manage... He has his first appointment at Children's on Tuesday so that will be the test.. We have to get accustomed to giving him his meds at midnight, then 2am, then 6am, all in syringes into his g-tube and then flushing them with sterile water syringes...aaaaahhhhhh!!!!! You would NOT believe the number of syringes we have in this house! Not to mention Linc's medicine fridge they brought and placed in his room, we have cases and cases of medical supplies EVERYWHERE! I really think we have to move.. our house is beyond cluttered right now!!
He is such a sweet and happy baby... we are just thrilled beyond belief to have him home with us and see his smiling happy face every day!!!
I am so glad he got to come home before Christmas. The pictures are great. love aunt Bernice
ReplyDeleteHow TOTALLY AWESOME that Lincoln is HOME!!!! We are so happy for you. The NICU will never be the same. Sounds like you are enjoying every moment. I know there are a lot of things when you think about them that will seem difficult, but just take one day at a time and you will muddle through! Have a wonderful Christmas!
ReplyDeleteI am so happy for all of you! What a blessing that you can wake up with him Christmas morning, what a gift! Finally you can love, cuddle and kiss him 24 hours a day. Now that he is home, please tell me that you are going to continue his blog? He brightens up my day when I can see his happy smiling face. Love to you all, and I cant wait to see him again.
ReplyDeleteMerry Christmas!
C. Schertzer
That's great! Another angle that really helps put everything into perspective. You probably never thought you'd get here. You guys are doing awesome.
ReplyDeleteI am so late in seeing this. I'm so excited for you all and so glad that Lincoln is home!
ReplyDeleteYou will all continue to be in my thoughts and prayers. I hope you will continue Lincoln's blog.