Dad was trying to kiss his little furry head but couldn't reach!
What a confusing week!! Just last Thursday we felt like they were preparing us for a major downturn in Lincoln's health and it seemed as though there was no chance of survival for him.. but as he always does, he has proven them wrong! The contrast study done on Lincoln's lower intestines showed they are ok!! The doctors and we were SHOCKED! We were all convinced he had dead or seriously injured bowel but now we know that at least the lower section is ok.. the part that is a little higher up was not tested but seems to be in working order! Of course that was great and unexpected news.. but that just leads to more questions about why his platelets are constantly dropping despite almost daily transfusions... and he is having more bleeding into his diaper. No one can quite figure this out so far.. we were all convinced it was a problem from the recent NEC diagnosis and was a bowel issue but now we do not know. He has not had anymore abnormal cells so leukemia doesn't seem likely... it's a mystery.. because of his illness he is having malnutrition issues from the TPN... despite the fact that they are giving him all the necessary nutrients through the iv (tpn) they aren't being absorbed (or something like that... it's confusing).. so his 'albumin' (protein) level is very low now too. He got more platelets today and blood yesterday.. it's a neverending process! After yesterday's major scare I let Daddy hold him today.. haha.. they did very well and I almost had the leave the NICU from laughing so hard at Daddy having soo many issues. It all started when he had to have his arm taped with a million cords and was instructed to NOT MOVE his arm so we didn't have a repeat of yesterdays adventures.. so being Greg he struggled greatly with being pinned down/taped down to the chair while unable to recline fully or move in general.. it really was hilarious to see and I had to remind him that I do this every day for many more hours.. haha! Of course he loved it though and it is totally worth it to hold our precious son for as long as we can every day... Lincoln did attempt to push off his dad and escape a few times but we didn't let him.. or as our hilarious doctor put it 'try not to let him commit suicide on you today'.. haha!! He cracks us up!!!
How did Greg stay still for that long.. that would have been so funny to see.. he does look like a natural though holding his baby boy. Hope things continue to look up.
ReplyDeleteLove you guys.. keep the faith