Born April 5, 2009 6:37 pm. 1 pound 8.5 ounces, 12 1/2 inches long, at 25 weeks and 1 day. Lincoln has short gut syndrome and is TPN dependent.
Thursday, September 10, 2009
PISSED OFF PARENTS!!!!!!!!!!!
Ok, my evening started off fairly happily.. baking cookies with Cole like the 'old' days.. (if that is possbile in our situation) but... that quickly changed when I found out that Lincoln can no longer have any visitors until 'flu' season is over.... he can only have grandparents/parents visiting him.. til Spring or whenever.. even his own brother can't come see him.. this really really makes me mad.. I get the whole 'flu' panic thing or whatever but SERIOUSLY!!!! So when is it and HOW is it that Children's hospital gained full custody of our son?? It's like he is their personal property!!! Maybe we should tag him with a 'property of Nationwide Children's Hospital sticker" Bullshit! I'm done with all of their rules/regulations/stipulations/fairytales.... so I guess they will just move him into his little new 'closet' room and leave him there to be alone.. what the hell???? NOOOOOOOO.... he needs to be at home where we can love him and give him the attention he needs.... I understand that he needs to be in this place for now but I will NOT force him into complete isolation... NOPE!!!!!!!! I do not consider myself to be a fighter/person with a backbone but I MUST say this whole hellacious experience has changed me... ARE we the ONLY people in America that have been victims of this situation??????????????????? If you are out there please email us.... WOW!!!!!!!!!
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That is bullcrap! Hello if your sick dont come to the hospital, if your not wash your hands and come on in...geezzz I can't believe they are doing that, makes me mad. I can't imagine being in your shoes, Iv been praying for you guys and little Lincoln. Try to keep your head up.
ReplyDeletePlease review this website:
ReplyDeletehttp://www.nationwidechildrens.org/gd/templates/pages/AboutUs/AboutUs.aspx?page=441
I would start here, and not stop!
Here is where I would start with your concerns. Dont give up, he is worth the fight, as you well know! Like I said before I understand its for his protection but it has to be heart breaking. I also mentioned a web cam. Does any of your friends or family have one that you could use? That way we could log in and see Linc, and he could see and hear you too. That way Colton could read books to him etc. This does not take the place of physical contact, but it will visually and audibly stimulate him!
ReplyDeletePatient Liaison:
Nationwide Children's values service to our patients, families and visitors. The hospital offers a Patient Liaison, Thom Juarros, who can be reached at (614) 722-6593 or via e-mail at Thom.Juarros@NationwideChildrens.org.
Administrator On-Call:
In addition, there is a hospital Administrator On-Call at all times to attend to issues should the liaison be unavailable or the issue warrants their attention. The Administrator On-Call can be reached via the hospital operator at (614) 722-2000.
Concerns About Patient Care:
In the event that any of our customers have concerns about patient care and/or safety in the organization, Nationwide Children's encourages them to contact the Patient Liaison or Administrator On-Call to request assistance. If the concerns in question can not be resolved at these levels, the individual is encouraged to contact the Joint Commission on Accreditation of Healthcare Organizations (JCAHO). Customers may contact JCAHO at the following Web site: http://www.jcaho.org/general+public/public+input/report+a+complaint/index.htm