Lincoln is doing relatively ok. He has a wound dehiscence from surgery. Our understanding is that the swelling from his surgery pushed the stitches out so much that it caused them to pull apart and they had to remove the stitches and stuff the opening with 'angel hair' to absorb all the discharge from it. It looks awful... looks like a long row of hay or something stuffed in there and it has a huge gap... poor baby!! They will keep removing and replacing it to get rid of the discharge.. I don't know.. it's very strange and nasty!!! He also has a ton of dark green 'bilious' stuff coming out of his new g-tube so that is very concerning to the nurses... He is at room air on the vent but the pressure is still very high due to his swelling. We really don't get any information at all when we go in there.. our nurses are great and tell us what they know but other than that we don't hear from any doctors. We asked to speak to our doctor yesterday and she basically told us she couldn't answer our questions about his future.. whether he will ever eat or not.. she just told us options of intestinal transplant etc... which we already knew. They will keep watching and waiting and eventually will study the remaining intestines to see if it would be safe to try to feed or if further surgery will be needed. They won't even attempt that until that green discharge is clear.. who knows how long that will be!!! The good thing is that Linc is very active and responsive even despite being on heavy medication and morphine drip.. so that's encouraging. He grabbed onto his vent tube several times while we were there and tried to pull it out.. he almost did! He is hating the vent and I'm afraid he will succeed in extubating himself soon..haha.. he is very feisty!! It was funny to pry his little fingers off of it so many times tonight.. he wasn't willing to let go!
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